{"id":95986,"date":"2019-04-10T15:28:36","date_gmt":"2019-04-10T07:28:36","guid":{"rendered":"http:\/\/www.fagao.me\/?p=95986"},"modified":"2019-04-10T15:28:36","modified_gmt":"2019-04-10T07:28:36","slug":"facebook%e5%92%8c%e6%8e%a8%e7%89%b9%e7%ad%89%e7%a4%be%e4%ba%a4%e5%aa%92%e4%bd%93%e5%a6%82%e4%bd%95%e6%88%90%e4%b8%ba%e4%b8%b4%e5%ba%8a%e8%af%95%e9%aa%8c%e7%9a%84%e4%b8%8b%e4%b8%80%e8%82%a1%e7%a0%b4","status":"publish","type":"post","link":"https:\/\/www.fagao.me\/p\/95986.htm","title":{"rendered":"Facebook\u548c\u63a8\u7279\u7b49\u793e\u4ea4\u5a92\u4f53\u5982\u4f55\u6210\u4e3a\u4e34\u5e8a\u8bd5\u9a8c\u7684\u4e0b\u4e00\u80a1\u7834\u574f\u529b\u91cf"},"content":{"rendered":"<p><img decoding=\"async\" src=\"https:\/\/www.fagao.me\/images\/uploads\/2019_006.jpg\" alt=\"\"><\/p>\n<div class=\"img-container\"><\/div>\n<p><span class=\"bjh-p\">\u56fe\u7247\u6765\u6e90\uff1aAbigail Bobo<\/span><\/p>\n<p><span 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2016\u5e74\u7684\u4e00\u9879\u8c03\u67e5\u53d1\u73b0\uff0c\u6bcf\u56db\u5bb6\u4e3b\u8981\u5236\u836f\u516c\u53f8\u4e2d\u5c31\u6709\u4e09\u5bb6\u4f7f\u7528\u60a3\u8005\u54a8\u8be2\u59d4\u5458\u4f1a\u6536\u96c6\u6709\u5173\u4e34\u5e8a\u8bd5\u9a8c\u8bbe\u8ba1\u7684\u53cd\u9988\u610f\u89c1\u3002\u5305\u62ecThe  BMJ\u5728\u5185\u7684\u4e00\u4e9b\u79d1\u5b66\u671f\u520a\u5c06\u60a3\u8005\u5217\u4e3a\u63d0\u4ea4\u7a3f\u4ef6\u7684\u540c\u884c\u8bc4\u5ba1\u5458\u3002<\/span><\/p>\n<p><span 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class=\"bjh-p\">\u5728Garrett\u4e09\u5c81\u65f6\uff0c\u5728\u7530\u7eb3\u897f\u5dde\u7eb3\u4ec0\u7ef4\u5c14\u62c5\u4efb\u7269\u7406\u6cbb\u7597\u5e08\u7684Amber\u6ce8\u610f\u5230\u60c5\u51b5\u6709\u4e9b\u4e0d\u5bf9\u52b2\u3002\u5f53Garrett\u8bd5\u56fe\u8df3\u8d77\u6765\u65f6\uff0c\u4ed6\u65e0\u6cd5\u5c06\u811a\u62ac\u79bb\u5730\u9762\uff0c\u4ed6\u722c\u697c\u68af\u65f6\u770b\u8d77\u6765\u5f88\u4e0d\u7a33\u5f53\u3002  Amber\u5411Garrett\u7684\u513f\u79d1\u533b\u751f\u8be2\u95ee\u4e86\u7b54\u6848\uff0c\u4f46\u88ab\u544a\u77e5\uff0c\u968f\u7740\u65f6\u95f4\u7684\u63a8\u79fb\uff0c\u4ed6\u53ef\u80fd\u4f1a\u8ddf\u540c\u9f84\u4eba\u4e00\u6837\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">\u6709\u4e00\u5929\uff0c\u5979\u770b\u7740Garrett\u7ad9\u5728\u5730\u677f\u4e0a\u7ad9\u8d77\u6765\uff0c\u5979\u7a81\u7136\u77e5\u9053\u7b54\u6848\u4e86\u3002\u4ed6\u7528\u624b\u81c2\u5e2e\u52a9\u62ac\u8d77\u8eab\u4f53\u7684\u65b9\u5f0f\u4e0d\u4ec5\u4ec5\u662f\u4e00\u4e2a\u602a\u7656\uff1a\u8fd9\u662f\u5979\u5728\u5b66\u6821\u5b66\u5230\u808c\u8089\u8425\u517b\u4e0d\u826f\u75c7\u7684\u6807\u5fd7\u3002  \u201c\u8fd9\u53ea\u662f\u8ba9\u6211\u7a81\u7136\u53d1\u73b0\uff0c\u201d\u5979\u8bf4\uff0c\u201c\u6211\u60f3\uff0c\u2018\u5929\u54ea\uff0c\u539f\u6765\u662f\u8fd9\u6837\u3002\u2019\u201d<\/span><\/p>\n<p><span class=\"bjh-p\">\u675c\u6c0f\u808c\u8089\u8425\u517b\u4e0d\u826f\u75c7(DMD)\u662f\u4e00\u79cd\u4e3b\u8981\u5f71\u54cd\u7537\u5b69\u7684\u9057\u4f20\u6027\u75be\u75c5\uff0c\u7531\u4e00\u79cd\u540d\u4e3aDMD\u7684\u57fa\u56e0\u7a81\u53d8\u5f15\u8d77\u3002\u5b83\u7f16\u7801\u7684\u808c\u8425\u517b\u4e0d\u826f\u86cb\u767d\u5bf9\u7ef4\u6301\u5065\u5eb7\u7684\u808c\u8089\u7ec6\u80de\u5f88\u91cd\u8981;\u6ca1\u6709\u5b83\uff0c\u808c\u8089\u4f1a\u9010\u6e10\u840e\u7f29\u3002\u8bb8\u591a\u60a3\u6709\u8fd9\u79cd\u75be\u75c5\u7684\u4eba\u5728\u4ed6\u4eec12\u5c81\u65f6\u9700\u8981\u5750\u8f6e\u6905\uff0c\u5e76\u4e14\u5728\u4ed6\u4eec\u5341\u51e0\u5c81\u7684\u65f6\u5019\u547c\u5438\u56f0\u96be\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">Amber\u548c\u5979\u4e08\u592b\u63a5\u4e0b\u6765\u7684\u56db\u5e74\u662f\u5728\u60b2\u4f24\u4e2d\u5ea6\u8fc7\u7684\u3002  \u201c\u6211\u4eec\u79f0\u4e4b\u4e3a\u9ed1\u6697\u7684\u65e5\u5b50\u3002\u201d\u5979\u8bf4\uff0c\u201c\u6211\u4eec\u65e0\u80fd\u4e3a\u529b\uff1a\u65e0\u6cd5\u5de5\u4f5c\uff0c\u65e0\u6cd5\u4e0e\u5176\u4ed6\u5bb6\u957f\u4ea4\u8c08\uff0c\u65e0\u6cd5\u83b7\u53d6\u8d44\u6e90\u3002\u201d<\/span><\/p>\n<p><span class=\"bjh-p\">\u5f53Garrett\u5927\u7ea6\u4e03\u5c81\u65f6\uff0cAmber\u5f00\u59cb\u628a\u89c6\u7ebf\u8f6c\u5411\u5176\u5b83\u5730\u65b9\u3002\u5979\u5728\u7f51\u4e0a\u5192\u9669\uff0c\u9047\u5230\u4e86\u5176\u4ed6\u7c7b\u4f3c\u906d\u9047\u7684\u4eba\uff0c\u4e0e\u90a3\u4e9b\u6b63\u5728\u52aa\u529b\u89e3\u51b3\u75be\u75c5\u540e\u671f\u9636\u6bb5\u7684\u5e74\u9f84\u8f83\u5927\u7537\u5b69\u7684\u7236\u6bcd\u804a\u5929\u3002  \u201c\u770b\u7740\u4ed6\u4eec\u7ecf\u5386\u4e86\u4e34\u5e8a\u8bd5\u9a8c\u7684\u8fc7\u7a0b\u548c\u56f0\u96be\uff0c\u6211\u60f3\u4e5f\u8bb8\u8fd9\u5c31\u662f\u6211\u4eec\u4e86\u89e3\u4e34\u5e8a\u8bd5\u9a8c\u7684\u5730\u65b9\u3002\u201d\u5979\u8bf4\u3002<\/span><\/p>\n<div class=\"img-container\"><\/div>\n<p><span class=\"bjh-p\">\u56fe\u7247\u6765\u6e90\uff1aAbigail Bobo<\/span><\/p>\n<p><span class=\"bjh-p\">\u533b\u7597\u4e2d\u5fc3\u548c\u5236\u836f\u516c\u53f8\u5df2\u7ecf\u6ce8\u610f\u5230<a class=\"tag-links\" href=\"https:\/\/www.fagao.me\/p\/t\/164\">\u793e\u4ea4\u5a92\u4f53<\/a>\u5438\u5f15\u60a3\u8005\u7684\u529b\u91cf\u3002\u4e00\u4e9b\u4eba\u5df2\u7ecf\u5f00\u59cb\u52aa\u529b\u5ba3\u4f20\u8bd5\u9a8c\uff0c\u4f8b\u5982\u6709\u9488\u5bf9\u6027\u7684Facebook\u7fa4\u4f53\u3002\u5e0c\u671b\u5b83\u53ef\u4ee5\u5e2e\u52a9\u8bd5\u9a8c\u62db\u8058\u4eba\u5458\u89e3\u51b3\u65e5\u76ca\u4e25\u91cd\u7684\u95ee\u9898\uff1a\u53c2\u4e0e\u8005\u77ed\u7f3a\uff0c\u8fd9\u5ef6\u957f\u4e86\u8fdb\u884c\u4e34\u5e8a\u7814\u7a76\u6240\u9700\u7684\u65f6\u95f4\u3002<\/span><\/p>\n<p><img decoding=\"async\" src=\"https:\/\/www.fagao.me\/images\/uploads\/2017_016.jpg\" alt=\"\"><\/p>\n<p><span class=\"bjh-p\">\u968f\u7740\u516c\u53f8\u8d8a\u6765\u8d8a\u5173\u6ce8\u4e3a\u7279\u5b9a\u60a3\u8005\u7fa4\u4f53\u91cf\u8eab\u5b9a\u5236\u7f55\u89c1\u75be\u75c5\u548c\u7cbe\u51c6\u533b\u5b66\uff0c\u627e\u5230\u7b26\u5408\u5fc5\u8981\u6807\u51c6\u7684\u5fd7\u613f\u8005\u53d8\u5f97\u66f4\u52a0\u56f0\u96be\u3002\u9a6c\u8428\u8bf8\u585e\u5dde\u6ce2\u58eb\u987f\u5e02\u4e2d\u5fc3\u7684\u4e34\u5e8a\u8bd5\u9a8c\u7814\u7a76\u4eba\u5458Kenneth  Getz\u8868\u793a\uff0c\u81ea20\u5e74\u524d\u5854\u592b\u8328\u836f\u7269\u5f00\u53d1\u7814\u7a76\u4e2d\u5fc3(Tufts Center for the Study of Drug  Development)\u5f00\u59cb\u8ddf\u8e2a\u8fd9\u4e9b\u836f\u7269\u4ee5\u6765\uff0c\u8fd9\u662f\u62db\u52df\u548c\u7559\u7528\u7387\u9762\u4e34\u6700\u7cdf\u7cd5\u7684\u60c5\u51b5\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">\u201c\u5728\u6574\u4e2a\u884c\u4e1a\uff0c\u6bcf\u4e2a\u4eba\u90fd\u8ba4\u4e3a\u8fd9\u662f\u4e00\u4e2a\u5de8\u5927\u7684\u95ee\u9898\u3002\u201d\u5bbe\u5915\u6cd5\u5c3c\u4e9a\u5dde\u97e6\u6069\u5e02\u7684\u5408\u540c\u7814\u7a76\u7ec4\u7ec7InClinica\u7684\u9996\u5e2d\u6267\u884c\u5b98\u8a79\u59c6\u65af\u00b7\u8bfa\u5170\u8bf4\uff0c\u4ed6\u6b63\u5728\u8fdb\u884c\u4e34\u5e8a\u8bd5\u9a8c\uff0c\u201c\u5b83\u4e0d\u4f1a\u6d88\u5931\uff0c\u5b83\u4f1a\u53d8\u5f97\u66f4\u7cdf\u3002\u201d<\/span><\/p>\n<p><span class=\"bjh-p\">\u62db\u52df\u95ee\u9898\u5df2\u7ecf\u8ba9\u6f5c\u5728\u7684\u53c2\u4e0e\u8005\u5229\u7528\u5e76\u6539\u53d8\u4e86\u4ed6\u4eec\u4e0e\u4e34\u5e8a\u7814\u7a76\u4eba\u5458\u7684\u5173\u7cfb\uff1a\u4e00\u9879\u8fc7\u4e8e\u7e41\u7410\u7684\u8bd5\u9a8c\uff0c\u6216\u8005\u8feb\u4f7f\u8bb8\u591a\u53c2\u4e0e\u8005\u8fdb\u5165\u5bf9\u7167\u7ec4\uff0c\u4ece\u4e00\u5f00\u59cb\u5c31\u6ce8\u5b9a\u8981\u5931\u8d25\u3002  \u201c\u8bb8\u591a\u516c\u53f8\u90fd\u660e\u767d\uff0c\u5982\u679c\u6ca1\u6709\u4e0e\u60a3\u8005\u6210\u4e3a\u5e73\u7b49\u7684\u5408\u4f5c\u4f19\u4f34\uff0c\u6211\u4eec\u5c31\u65e0\u6cd5\u8fbe\u5230\u76ee\u7684\u3002\u201d\u7ebd\u7ea6\u5e02\u5e15\u91d1\u68ee\u7814\u7a76\u4e2dMichael J. Fox\u57fa\u91d1\u4f1a\u526f\u9996\u5e2d\u6267\u884c\u5b98Sohini  Chowdhury\u8bf4\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">\u56e0\u6b64\uff0c\u836f\u7269\u516c\u53f8\u548c\u533b\u7597\u4e2d\u5fc3\u5df2\u7ecf\u8bf7\u6c42\u60a3\u8005\u54a8\u8be2\u59d4\u5458\u4f1a\u5e2e\u52a9\u8bc4\u4f30\u4e34\u5e8a\u8bd5\u9a8c\u3002\u53c2\u4e0e\u8005\u6709\u673a\u4f1a\u4ee5\u66f4\u5c11\u7684\u7a0b\u5e8f\u6216\u66f4\u8212\u9002\u7684\u6761\u4ef6\u8981\u6c42\u8fdb\u884c\u8bd5\u9a8c\u3002  Lipset\u56de\u5fc6\u8d77\u4e00\u9879\u5173\u4e8e\u7279\u5e94\u6027\u76ae\u708e(\u4e00\u79cd\u6e7f\u75b9)\u7684\u8bd5\u9a8c\u65b9\u6848\uff0c\u8be5\u65b9\u6848\u8981\u6c42\u53c2\u4e0e\u8005\u505c\u6b62\u4f7f\u7528\u4ed6\u4eec\u5e38\u7528\u7684\u836f\u7269\u516d\u5468\uff0c\u4ee5\u6e05\u9664\u4ed6\u4eec\u7684\u836f\u7269\u7cfb\u7edf\u3002\u4e00\u7ec4\u60a3\u6709\u76ae\u708e\u7684\u4eba\u611f\u5230\u9707\u60ca\uff1a\u957f\u65f6\u95f4\u6ca1\u6709\u7f13\u89e3\u662f\u4e0d\u53ef\u601d\u8bae\u7684\u3002  Lipset\u8bf4\uff1a\u201c\u6e05\u9664\u671f\u5728\u79d1\u5b66\u4e0a\u5b8c\u5168\u662f\u5408\u7406\u7684\u3002\u201d\u201c\u4f46\u5bf9\u4e8e\u6d89\u53ca\u7684\u4eba\u6765\u8bf4\uff0c\u8fd9\u662f\u5b8c\u5168\u65e0\u6cd5\u5fcd\u53d7\u7684\u3002\u201d<\/span><\/p>\n<p><span class=\"bjh-p\">\u8be5\u56e2\u961f\u8c03\u6574\u4e86\u534f\u8bae\uff0c\u800c\u4e0d\u662f\u5192\u9669\u542f\u52a8\u6ce8\u5b9a\u8981\u5931\u8d25\u7684\u8bd5\u9a8c\u3002\u5bf930\u4eba\u60a3\u8005\u54a8\u8be2\u59d4\u5458\u4f1a\u7684\u8bc4\u4f30\u53d1\u73b0\uff0c\u8bb8\u591a\u4eba\u6b63\u5728\u5c31\u7814\u7a76\u8bbf\u95ee\u7684\u4fbf\u5229\u6027\u548c\u53ef\u884c\u6027\uff0c\u4ee5\u53ca\u6267\u884c\u7684\u7a0b\u5e8f\u5b89\u6392\u63d0\u51fa\u5efa\u8bae\u3002\u54a8\u8be2\u59d4\u5458\u4f1a\u6709\u5145\u5206\u7406\u7531\u56de\u51fb\u3002  Getz\u8bf4\uff0c\u5728\u4e34\u5e8a\u8bd5\u9a8c\u671f\u95f4\u6267\u884c\u7684\u591a\u8fbe\u4e09\u5206\u4e4b\u4e00\u7684\u7a0b\u5e8f\uff0c\u4f8b\u5982\u8840\u6db2\u68c0\u67e5\u6216\u6d3b\u7ec4\u7ec7\u68c0\u67e5\uff0c\u5bf9\u4e8e\u836f\u7269\u6279\u51c6\u7533\u8bf7\u5e76\u4e0d\u91cd\u8981\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">\u201c\u5e73\u8861\u7684\u4e00\u90e8\u5206\u662f\u8ba4\u8bc6\u5230\uff0c\u5c3d\u7ba1\u826f\u597d\u7684\u79d1\u5b66\u662f\u4f1f\u5927\u7684\uff0c\u4f46\u5b83\u4e5f\u5fc5\u987b\u662f\u53ef\u884c\u548c\u65b9\u4fbf\u7684\u3002\u201dGetz\u8bf4\uff0c\u201c\u8fd9\u5c31\u662f\u60a3\u8005\u53c2\u4e0e\u5b8c\u5168\u6539\u53d8\u4e86\u601d\u60f3\u7684\u5730\u65b9\u3002\u201d<\/span><\/p>\n<p><span class=\"bjh-p\">\u5728\u67d0\u4e9b\u60c5\u51b5\u4e0b\uff0c\u60a3\u8005\u53ca\u5176\u5021\u5bfc\u8005\u8054\u5408\u8d77\u6765\u5f00\u5c55\u81ea\u5df1\u7684\u4e34\u5e8a\u7814\u7a76\u3002\u5f53\u51ef\u745f\u7433\u00b7\u83b1\u6602\u4e8e2003\u5e74\u5fc3\u810f\u75c5\u53d1\u4f5c\u65f6\uff0c\u6070\u597d\u5728\u5979\u7684\u7b2c\u4e8c\u4e2a\u5b69\u5b50\u51fa\u751f\u540e\u4e0d\u4e45\uff0c\u5979\u5374\u88ab\u544a\u77e5\u8fd9\u53ea\u662f\u5728\u751f\u5b8c\u5b69\u5b50\u540e\u4f1a\u53d1\u751f\u7684\u4e8b\u60c5\u3002\u4f46\u83b1\u6602\u6700\u7ec8\u5f97\u77e5\u5979\u6709\u81ea\u53d1\u6027\u51a0\u72b6\u52a8\u8109\u5939\u5c42(SCAD)\uff0c\u8fd9\u662f\u4e00\u79cd\u7f55\u89c1\u7684\u75c5\u75c7\uff0c\u5f88\u5c11\u6709\u793e\u533a\u533b\u751f\u719f\u6089\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">\u83b1\u6602\u8bf4\uff0c\u6709\u4e00\u5929\u665a\u4e0a\uff0c\u5979\u5728\u201c\u968f\u610f\u641c\u7d22\u7559\u8a00\u677f\u201d\uff0c\u65e0\u610f\u53d1\u73b0\u4e86\u4e00\u4e2a\u5173\u4e8e\u5fc3\u810f\u75c5\u60a3\u8005\u7684\u7559\u8a00\u677f\u3002\u968f\u7740\u65f6\u95f4\u7684\u63a8\u79fb\uff0c\u51fa\u73b0\u4e86\u4e00\u4e2aSCAD\u4eba\u7fa4\u3002\u7136\u540e\u5979\u5f00\u59cb\u8bb0\u5f55\u4ed6\u4eec\u7684\u75c7\u72b6\u548c\u75be\u75c5\u8fc7\u7a0b\uff1a\u4ed6\u4eec\u88ab\u8bca\u65ad\u51fa\u7684\u5e74\u9f84\uff0c\u54ea\u4e2a\u52a8\u8109\u53d7\u5230\u5f71\u54cd\uff0c\u4ee5\u53ca\u662f\u5426\u53ef\u80fd\u4e0e\u6000\u5b55\u6709\u5173\u3002\u83b1\u6602\u5c06\u81ea\u5df1\u7684\u6570\u636e\u5e26\u7ed9\u4e86\u533b\u751f\uff0c\u5e76\u8bf4\u670d\u5979\u542f\u52a8\u4e00\u4e2a\u7814\u7a76\u9879\u76ee\u6765\u7f16\u5236SCAD\u7684\u529f\u80fd\u3002  \u201c\u8fd9\u662f\u4e2a\u5927\u5de5\u7a0b\uff0c\u56e0\u4e3a\u6211\u4eec\u89c9\u5f97\uff0c\u4f5c\u4e3a\u75c5\u4eba\uff0c\u6211\u4eec\u5fc5\u987b\u8fd9\u4e48\u505a\u3002\u201d\u83b1\u6602\u8bf4\uff0c\u201c\u5f53\u6211\u5c06\u4ed6\u4eec\u8fc4\u4eca\u4e3a\u6b62\u53d1\u73b0\u7684\u5185\u5bb9\u4e0e\u6211\u7684\u5c0f\u63d0\u8bae\u4e2d\u7684\u8f76\u4e8b\u6570\u636e\u8fdb\u884c\u6bd4\u8f83\u65f6\uff0c\u5b83\u7684\u8868\u73b0\u76f8\u5f53\u4e0d\u9519 &#8211;  \u800c\u4e14\u8fd9\u4e9b\u4ec5\u4ec5\u662f\u6765\u81ea\u8c08\u8bdd\u7684\u4eba\u3002\u201d<\/span><\/p>\n<p><span class=\"bjh-p\"><span class=\"bjh-strong\">\u5b89\u6170\u5242\u6548\u5e94<\/span><\/span><\/p>\n<p><span class=\"bjh-p\">Garrett\u7684\u7b2c\u4e00\u9879\u4e34\u5e8a\u8bd5\u9a8c\u65e8\u5728\u6d4b\u8bd5\u4e00\u79cd\u540d\u4e3a\u4ed6\u8fbe\u62c9\u975e(Cialis)\u7684\u836f\u7269\u662f\u5426\u6709\u52a9\u4e8e\u7537\u5b69\u4fdd\u6301DMD\u884c\u8d70\u3002\u8be5\u534f\u8bae\u76f8\u5bf9\u7b80\u5355\uff1a\u65e9\u4e0a\u53ea\u9700\u5403\u51e0\u7247\u836f\uff0c\u5916\u52a0\u4e00\u52fa\u82f9\u679c\u9171\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">\u4f46Garrett\u7684\u884c\u8d70\u80fd\u529b\u7ee7\u7eed\u4e0b\u964d\u3002\u9762\u5bf9\u9000\u884c\u6027\u75be\u75c5\u548c\u5206\u79d2\u6d41\u5931\u7684\u65f6\u95f4\uff0c\u5bb6\u4eba\u4e00\u76f4\u62c5\u5fc3\u4ed6\u5e94\u8be5\u7ee7\u7eed\u63a5\u53d7\u53e6\u4e00\u9879\u8bd5\u9a8c\u3002\u6700\u7ec8\uff0cAmber\u6253\u7535\u8bdd\u7ed9\u534f\u8c03\u5458\uff0c\u5e76\u8868\u793a\u73b0\u5728\u662f\u65f6\u5019\u8003\u8651\u9000\u51fa\u8bd5\u9a8c\u5e76\u8fdb\u884c\u4e0b\u4e00\u4e2a\u8bd5\u9a8c\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">\u5728\u7f51\u4e0a\uff0cAmber\u53ef\u4ee5\u770b\u5230\u62a4\u7406\u4eba\u5458\u5728\u5404\u79cd\u4e34\u5e8a\u7814\u7a76\u4e2d\u9762\u4e34\u540c\u6837\u7684\u51b3\u5b9a\u3002\u4e00\u4e9b\u5bb6\u957f\u53d1\u5e03\u4e86\u4ed6\u4eec\u7684\u5b69\u5b50\u8d70\u8def\u6216\u722c\u697c\u68af\u7684\u89c6\u9891\uff0c\u5e76\u63a8\u6d4b\u4ed6\u4eec\u662f\u5426\u6b63\u5728\u63a5\u53d7\u6d3b\u6027\u836f\u7269\u3002\u5982\u679c\u4ed6\u4eec\u6000\u7591\u5b69\u5b50\u6b63\u670d\u7528\u5b89\u6170\u5242\uff0c\u4e00\u4e9b\u5bb6\u957f\u4f1a\u516c\u5f00\u8c08\u8bba\u9000\u51fa\u7814\u7a76\u7684\u8ba1\u5212\u3002  \u201c\u6ca1\u6709\u4eba\u60f3\u5728\u63a7\u5236\u7ec4\u4e2d\u3002\u201d Amber\u8bf4\uff0c\u201c\u6211\u4eec\u7684\u5b69\u5b50\u6ca1\u6709\u592a\u591a\u65f6\u95f4\u3002\u6ca1\u6709\u4eba\u60f3\u6709\u65f6\u95f4\u6d6a\u8d39\u3002\u201d<\/span><\/p>\n<p><span class=\"bjh-p\">\u8bd5\u9a8c\u53c2\u4e0e\u8005\u957f\u671f\u4ee5\u6765\u4e00\u76f4\u8bd5\u56fe\u907f\u514d\u8fdb\u5165\u5b89\u6170\u5242\u7ec4;\u4ed6\u4eec\u5e0c\u671b\u83b7\u5f97\u673a\u4f1a\u4ece\u5b9e\u9a8c\u6027\u836f\u7269\u4e2d\u53d7\u76ca\u3002<a class=\"tag-links\" href=\"https:\/\/www.fagao.me\/p\/t\/164\">\u793e\u4ea4\u5a92\u4f53<\/a>\u7684\u51fa\u73b0\u4f7f\u5f97\u4eba\u4eec\u201c\u7741\u5f00\u773c\u201d\u770b\u5230\u7814\u7a76\u53d8\u5f97\u5bb9\u6613\u5f97\u591a\uff0c\u65b0\u6cfd\u897f\u5dde\u54c8\u80af\u8428\u514b\u5e02\u5021\u5bfc\u7ec4\u7ec7Parent  Project Muscular Dystrophy\u521b\u59cb\u603b\u88c1\u517c\u9996\u5e2d\u6267\u884c\u5b98Pat Furlong\u8bf4\u3002 \u201c\u5728<a class=\"tag-links\" href=\"https:\/\/www.fagao.me\/p\/t\/164\">\u793e\u4ea4\u5a92\u4f53<\/a>\u5174\u8d77\u4e4b\u524d\u9762\u524d\uff0c\u4f60\u4e0d\u4f1a\u8ba4\u8bc6\u90a3\u4e2a\u8bd5\u9a8c\u4e2d\u7684\u5176\u4ed6\u4eba\u3002\u201d  Furlong\u8bf4\uff0c\u4ed6\u7684\u4e24\u4e2a\u513f\u5b50\u90fd\u60a3\u6709DMD\u3002<\/span><\/p>\n<div class=\"img-container\"><\/div>\n<p><span class=\"bjh-p\">\u751f\u547d\u4f26\u7406\u5b66\u5bb6Lindsay McNair\u5728\u4e3a\u6ce2\u58eb\u987fVertex  Pharmaceuticals\u5de5\u4f5c\u65f6\u9996\u5148\u610f\u8bc6\u5230\u4e86\u8fd9\u4e00\u73b0\u8c61\u3002\u8be5\u516c\u53f8\u6b63\u5728\u8fdb\u884c\u4e00\u9879\u9488\u5bf9\u4e19\u578b\u809d\u708e\u75c5\u6bd2\u6f5c\u5728\u6cbb\u7597\u7684\u4e34\u5e8a\u8bd5\u9a8c\uff0c\u5f53\u65f6\u4e00\u540d\u7814\u7a76\u4eba\u5458\u62a5\u544a\u4e86\u5176\u53c2\u4e0e\u8005MedHelp.org\u7684\u4e00\u9879\u6d3b\u52a8\uff0cMedHelp.org\u662f\u4e00\u4e2a\u4e0e\u5065\u5eb7\u76f8\u5173\u7684<a class=\"tag-links\" href=\"https:\/\/www.fagao.me\/p\/t\/164\">\u793e\u4ea4\u5a92\u4f53<\/a>\u7f51\u7ad9\u3002\u4e00\u4e9b\u53c2\u4e0e\u8005\u8868\u793a\uff0c\u4ed6\u4eec\u6b63\u5728\u5916\u9762\u7684\u5b9e\u9a8c\u5ba4\u8fdb\u884c\u8840\u6db2\u68c0\u6d4b\uff0c\u4ee5\u4e86\u89e3\u4ed6\u4eec\u7684\u75c5\u6bd2\u6c34\u5e73\uff0c\u731c\u6d4b\u8c01\u6b63\u5728\u63a5\u53d7\u6d3b\u6027\u836f\u7269\uff0c\u4ee5\u53ca\u8c01\u63a5\u53d7\u7684\u662f\u5b89\u6170\u5242\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">McNair\u73b0\u5728\u662f\u6ce2\u58eb\u987fWIRB-Copernicus\u96c6\u56e2\u7684\u9996\u5e2d\u533b\u7597\u5b98\uff0c\u8be5\u516c\u53f8\u5bf9\u4e34\u5e8a\u8bd5\u9a8c\u8fdb\u884c\u9053\u5fb7\u8bc4\u4f30\uff0c\u51b3\u5b9a\u4e0e\u5979\u7684\u540c\u4e8b\u4ed4\u7ec6\u7814\u7a76\u3002\u4ed6\u4eec\u9605\u8bfb\u4e86\u5927\u7ea6\u4e00\u5e74\u7684\u516c\u5f00\u5728\u7ebf\u5065\u5eb7\u8ba8\u8bba\uff0c\u5e76\u6307\u51fa\u4efb\u4f55\u53ef\u80fd\u5f71\u54cd\u7814\u7a76\u7ed3\u679c\u7684\u8ba8\u8bba\u3002\u4ed6\u4eec\u53d1\u73b0\u53c2\u4e0e\u8005\u6b63\u5728\u6bd4\u8f83\u4ed6\u4eec\u836f\u4e38\u7684\u5916\u89c2\u548c\u5473\u9053\uff0c\u751a\u81f3\u5c06\u5b83\u4eec\u538b\u788e\u4ee5\u66f4\u597d\u7684\u89c2\u5bdf\u3002  McNair\u56de\u5fc6\u8bf4\uff0c\u5176\u4e2d\u4e00\u4e9b\u6d3b\u52a8\u662f\u5728\u96c5\u864e\u8d22\u7ecf\u516c\u53f8\u7684\u7559\u8a00\u677f\u4e0a\uff0c\u81f3\u5c11\u6709\u4e00\u4f4d\u91d1\u878d\u5206\u6790\u5e08\u5f15\u7528\u4ece\u7559\u8a00\u677f\u4e2d\u4ed6\u6216\u5979\u5173\u4e8e\u8bd5\u9a8c\u9884\u6d4b\u7684\u6570\u636e\uff0c\u4ee5\u53caVertex\u80a1\u7968\u7684\u5efa\u8bae\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">\u6ca1\u6709\u8bc1\u636e\u8868\u660e\u7f51\u7edc\u8ba9\u4eba\u201c\u7741\u5f00\u773c\u201d\u5f71\u54cd\u4e86\u8fd9\u4e9b\u8bd5\u9a8c\u3002\u4f46\u662f\u8fd9\u4e9b\u8f76\u4e8b\u4ee4\u5236\u836f\u5546\u611f\u5230\u4e0d\u5b89\u3002 \u201c\u6211\u4eec\u57fa\u672c\u4e0a\u5bf9<a class=\"tag-links\" href=\"https:\/\/www.fagao.me\/p\/t\/164\">\u793e\u4ea4\u5a92\u4f53<\/a>\u7684\u4f7f\u7528\u89c6\u800c\u4e0d\u89c1\u3002\u201dLipset\u8bf4\u3002  \u201cFacebook\u7834\u574f\u7814\u7a76\u7684\u79d1\u5b66\u5b8c\u6574\u6027\u53ea\u662f\u65f6\u95f4\u95ee\u9898\u3002\u201d<\/span><\/p>\n<p><span class=\"bjh-p\">\u534e\u76db\u987f\u7279\u533a\u5021\u5bfc\u7ec4\u7ec7Genetic  Alliance\u7684\u603b\u88c1\u517c\u9996\u5e2d\u6267\u884c\u5b98\u838e\u4f26\u00b7\u7279\u91cc\u56de\u5fc6\u8bf4\uff0c\u4ed6\u6b63\u5728\u7814\u7a76\u4e00\u98792013\u5e74\u7684\u8bd5\u9a8c\uff0c\u8be5\u8bd5\u9a8c\u6d4b\u8bd5\u4e8644\u540d\u60a3\u6709\u9ad8\u5242\u91cf\u9541\u7684\u4eba\uff0c\u4ed6\u4eec\u60a3\u6709\u4e00\u79cd\u7f55\u89c1\u7684\u9057\u4f20\u6027\u75be\u75c5\uff0c\u5373\u5f39\u6027\u5047\u9ec4\u7624\uff0c\u5b83\u4f1a\u5f71\u54cd\u7ed3\u7f14\u7ec4\u7ec7\u4e2d\u7684\u5f39\u6027\u7ea4\u7ef4\u3002\u5979\u8bf4\uff1a\u201c\u8fd9\u7fa4\u4eba\u90fd\u4e0a\u4e86Facebook\uff0c\u5f88\u5feb\u5c31\u77e5\u9053\u8c01\u662f\u63a7\u5236\u7ec4\u3002\u201d<\/span><\/p>\n<p><img decoding=\"async\" src=\"https:\/\/www.fagao.me\/images\/uploads\/F021.jpg\" alt=\"\"><\/p>\n<p><span class=\"bjh-p\">\u5728Furlong\u548cMcNair\u770b\u5230\u7684\u4e00\u4e9b\u5728\u7ebf\u5bf9\u8bdd\u4e2d\uff0c\u5982\u679c\u7236\u6bcd\u6ca1\u6709\u770b\u5230\u4efb\u4f55\u6539\u8fdb\uff0c\u4ed6\u4eec\u4f1a\u8ba8\u8bba\u5982\u4f55\u9000\u51fa\u8bd5\u9a8c\u3002  \u201c\u9000\u51fa\u975e\u5e38\u4ee4\u4eba\u6cae\u4e27\u3002\u201dInspire\u7684\u521b\u59cb\u4eba\u517c\u9996\u5e2d\u6267\u884c\u5b98Brian  Loew\u8bf4\u9053\uff0c\u8fd9\u662f\u4e00\u4e2a<a class=\"tag-links\" href=\"https:\/\/www.fagao.me\/p\/t\/164\">\u793e\u4ea4\u5a92\u4f53<\/a>\u7f51\u7ad9\uff0c\u8fce\u5408\u6709\u533b\u7597\u6761\u4ef6\u7684\u4eba\u548c\u4ed6\u4eec\u7684\u7167\u987e\u8005\u3002\u8fd9\u53ef\u80fd\u4f1a\u5ef6\u8fdf\u8bd5\u9a8c\u7684\u5b8c\u6210\uff0c\u5e76\u5411\u76d1\u7ba1\u673a\u6784\u7684\u5ba1\u67e5\u4eba\u5458\u53d1\u51fa\u8b66\u544a\u6807\u5fd7\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">\u5f53\u53c2\u4e0e\u8005\u5206\u4eab\u4ed6\u4eec\u53ef\u80fd\u6b63\u5728\u7ecf\u5386\u7684\u526f\u4f5c\u7528\u7684\u7ec6\u8282\u65f6\uff0c\u4ed6\u4eec\u53ef\u4ee5\u8bf1\u5bfc\u5176\u4ed6\u4eba\u53bb\u601d\u8003\u2014\u2014\u7136\u540e\u53ef\u80fd\u62a5\u544a\u2014\u2014\u7c7b\u4f3c\u7684\u75c7\u72b6\u3002\u5bf9\u4e8e\u8bd5\u9a8c\u7684\u5173\u952e\u4e34\u5e8a\u7ec8\u70b9\u4e5f\u662f\u5982\u6b64\uff0c\u7279\u522b\u662f\u5982\u679c\u8be5\u7ec8\u70b9\u5728\u67d0\u79cd\u7a0b\u5ea6\u4e0a\u662f\u4e3b\u89c2\u7684\uff0c\u4f8b\u5982\u75bc\u75db\u91cf\u8868\u7684\u6392\u540d\u3002  Lipset\u8bf4\uff0c\u6709\u65f6\u53c2\u4e0e\u8005\u4f1a\u4ea4\u6362\u6709\u5173\u53c2\u4e0e\u8bd5\u9a8c\u6807\u51c6\u7684\u4fe1\u606f\uff0c\u4f8b\u5982\u52a0\u5165\u963f\u5c14\u8328\u6d77\u9ed8\u75c5\u7814\u7a76\u53ef\u80fd\u9700\u8981\u8fdb\u884c\u8ba4\u77e5\u6d4b\u8bd5\u7684\u5206\u6570\u3002\u6709\u4e86\u8fd9\u4e9b\u77e5\u8bc6\uff0c\u90a3\u4e9b\u60f3\u53c2\u52a0\u7814\u7a76\u7684\u4eba\u53ef\u4ee5\u505a\u76f8\u5e94\u7684\u51c6\u5907\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">Amber\u8bf4\u5979\u5728\u8fd9\u6837\u7684\u5728\u7ebf\u8ba8\u8bba\u4e2d\u4e00\u822c\u4fdd\u6301\u5b89\u9759\uff0c\u4f46\u770b\u5230\u5176\u4ed6\u5bb6\u5ead\u8c08\u8bba\u4ed6\u4eec\u7684\u513f\u5b50\u8d70\u8def\u6216\u722c\u697c\u68af\u7684\u80fd\u529b\u53ef\u80fd\u6709\u6240\u6539\u5584\u65f6\uff0c\u4ecd\u7136\u662f\u76f8\u5f53\u75db\u82e6\u7684\u3002Garret\u6ca1\u6709\u7ecf\u5386\u8fc7\u8fd9\u6837\u7684\u8fdb\u6b65\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">\u5728\u7b2c\u4e00\u6b21\u4e34\u5e8a\u8bd5\u9a8c\u540e\uff0c\u4e00\u5bb6\u4eba\u5f00\u59cb\u5f80\u8fd4\u5c06Garrett\u9001\u5230\u4fc4\u4ea5\u4fc4\u5dde\u7684Cincinnati\u8fdb\u884c\u6297\u4f53\u8bd5\u9a8c\u3002\u5f00\u8f66\u3001\u6253\u9488\u548c\u5728\u533b\u9662\u5ea6\u8fc7\u7684\u65f6\u95f4\u90fd\u8ba9\u4eba\u7b4b\u75b2\u529b\u5c3d\u3002  \u201c\u4e34\u5e8a\u8bd5\u9a8c\u8ba9\u4eba\u7684\u5174\u594b\u3001\u6cae\u4e27\u548c\u5bb3\u6015\u7b49\u60c5\u7eea\u4ea4\u7ec7\u5728\u4e00\u8d77\u3002\u201d Furlong\u8bf4\uff0c  \u201c\u80af\u5b9a\u6709\u4e00\u4e9b\u5229\u4ed6\u4e3b\u4e49\u3002\u4f46\u662f\u6211\u53ef\u4ee5\u544a\u8bc9\u4f60\uff0c\u7279\u522b\u662f\u5728\u7f55\u89c1\u7684\u75be\u75c5\u4e2d\uff0c\u5f53\u5f88\u591a\u60a3\u6709\u7f55\u89c1\u75be\u75c5\u7684\u4eba\u90fd\u662f\u5b69\u5b50\u65f6\uff0c\u4f5c\u4e3a\u7167\u987e\u7684\u4eba\uff0c\u4f60\u60f3\u8981\u7684\u5c31\u662f\u4ece\u4e2d\u53d7\u76ca\u3002\u201d<\/span><\/p>\n<p><span class=\"bjh-p\">\u5f53Garrett  11\u5c81\u65f6\uff0cAmber\u5c4f\u4f4f\u547c\u5438\uff0c\u795e\u7ecf\u7d27\u7ef7\u3002\u5728\u90a3\u4e2a\u5e74\u9f84\uff0c\u4ed6\u5fc5\u987b\u81ea\u5df1\u540c\u610f\u7ee7\u7eed\u53c2\u52a0\u6297\u4f53\u8bd5\u9a8c\u3002Amber\u540c\u610f\u4e86\uff0c\u4f46Amber\u6000\u7591\u4ed6\u662f\u5411\u7236\u6bcd\u7684\u610f\u613f\u5c48\u670d\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">Furlong\u4e5f\u6709\u8fc7\u8fd9\u6837\u7684\u7126\u8651\u3002 \u201c\u6709\u90a3\u4e48\u4e00\u4e2a\u65f6\u523b\uff0c\u4f60\u7684\u513f\u5b50\u770b\u7740\u4f60\u8bf4\uff0c\u2018\u6211\u4e0d\u60f3\u8fd9\u6837\u505a\u3002\u6211\u60f3\u5ff5\u6211\u7684\u670b\u53cb\u3002\u6211\u4e0d\u5e0c\u671b\u8ba9\u4ed6\u4eec\u5bf9\u6211\u56f0\u60d1\u3002\u2019\u201d\u5979\u8bf4\u3002  \u201c\u4f5c\u4e3a\u7236\u6bcd\uff0c\u4f60\u4f1a\u5fcd\u4e0d\u4f4f\u731c\u6d4b\uff1a&#8217;\u8fd9\u662f\u6b63\u786e\u7684\u5417?&#8217;\u201d  \u5979\u8bf4\uff0c\u901a\u5e38\uff0cDMD\u513f\u7ae5\u7684\u7236\u6bcd\u4f1a\u5728\u7f51\u4e0a\u5206\u4eab\u4fe1\u606f\uff0c\u56e0\u4e3a\u4ed6\u4eec\u8feb\u5207\u5e0c\u671b\u542c\u5230\u67d0\u4eba\u3001\u4efb\u4f55\u4eba\u3001\u544a\u8bc9\u4ed6\u4eec\u4ed6\u4eec\u7684\u5b69\u5b50\u6b63\u5728\u6539\u5584\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">\u7814\u7a76\u4eba\u5458\u4ecd\u5728\u52aa\u529b\u89e3\u51b3\u5982\u4f55\u6700\u597d\u5730\u5904\u7406\u6b64\u7c7b\u5728\u7ebf\u8ba8\u8bba\u3002  Inspire\u4e3a\u5176150\u4e07\u4f1a\u5458\u4e2d\u7684\u4e00\u4e9b\u6210\u5458\u5c55\u793a\u4e86\u6709\u9488\u5bf9\u6027\u7684\u4e34\u5e8a\u8bd5\u9a8c\u5e7f\u544a\uff0c\u660e\u786e\u7981\u6b62\u53ef\u80fd\u5f71\u54cd\u4e34\u5e8a\u8bd5\u9a8c\u7ed3\u679c\u7684\u8ba8\u8bba\uff0c\u4f8b\u5982\u6bd4\u8f83\u53ef\u80fd\u7684\u526f\u4f5c\u7528\uff0c\u6216\u8ba8\u8bba\u83b7\u5f97\u8bd5\u9a8c\u8d44\u683c\u7684\u53c2\u4e0e\u6807\u51c6\u3002\u8be5\u7f51\u7ad9\u8058\u8bf7\u7248\u4e3b\u5ba1\u67e5\u5e16\u5b50\u3002<\/span><\/p>\n<p><span class=\"bjh-p\">\u201c\u6211\u4eec\u5bf9\u6b64\u8fdb\u884c\u4e86\u5f88\u591a\u5185\u90e8\u8fa9\u8bba\uff0c\u201d Loew\u8c08\u5230\u8fd9\u9879\u653f\u7b56\u65f6\u8bf4\uff0c  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